Thursday, June 3, 2010

# doctor # kids

Time for Me Thursday

Whew, what a day! I woke up feeling as if I hadn't slept at all. I really don't know what that's about. Then, after puttering around the house a bit, the boys and I loaded up for a trip into Grand Rapids. Ben had an appointment with his neurologist.

After meeting with Dr. DeRoos, I feel like we're back at the beginning when it comes to our future treatment options. It turns out that Dr. DeRoos feels as if the dorsal rhizotomy might be a good option, after all. We have another meeting with him in 6 months. That meeting will also include a physical therapist to test to see if Ben's muscles are strong enough to handle the surgery. We're also looking at the possibility of doing hamstring lengthening. Sometimes it's just so hard to be a parent. You don't want to make the wrong choice, especially when those choices include surgeries.

Dr. DeRoos wants us to work with Ben this summer doing bike riding and swimming. There's only a few problems with that.

1) The boys don't have bikes and I can't afford to buy them any.
2.) Ben seems almost afraid to get on a bike for fear it will fall over and he'll be hurt.
3.) We don't have a pool and the village doesn't have a community anything.
4.) The district where the boys live with their dad has one but a family membership is $50/mo for residents and $65/mo for non-residents. I don't know if they'd let us do a resident one since they go to school there but even if they did, I can't afford $150 for the summer.

Ok, I guess that's more than a few. I'm going to have to do some serious thinking on how we can make this happen for him. What's most important is that he gets what he needs to help him with his walking and strengthening his muscles. I just don't know where the money will come from. There's the cost of the pool membership, bikes and the cost of gas to go back and forth to the pool. It's 23 miles each way.

So, I guess I need some time to recenter and relax. What am I going to do? I'm going to take the boys upstairs, tuck them into bed and read them another chapter of the 2nd Percy Jackson book. I'm going to spend some time giving them what I can give them. My time and my love.



Susan (5 Minutes For Mom) said...

Oh I am sooooo sorry to hear this.

How heartbreaking... I will pray that you find a way to make it all work.


Mommy Moment said...

I will pray for you! I am sure it will all work out better than you could ever ask or imagine!


Anonymous said...

I'm so sorry to hear this. Let me know how I can help.

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